Cancer Campaigning

Leukaemia CARE Scotland’s involvement in various patient forums and consultation groups means that we can use our influence to affect government opinion. 

As a charity we are involved in campaigning, particularly with regard to patient well being, NHS funding and the availability of drugs and new drug licensing.

Leukaemia CARE is passionately and pro-actively involved in all types of cancer campaigning for patient rights and treatments within the UK and across Europe. We are involved in many coalitions and alliances including;

The Cancer Campaigning Group (CCG)

An influential coalition of over 40 national cancer-related charities. Founded in 2002, the aim of the CCG is to campaign for the continued prioritisation of the prevention, treatment and research of cancers. The CCG is focused on communicating these messages to Government and parliamentarians.
 
For more information on CCG click here

The Scottish Cancer Coalition (SCC)

Comprises 20 major charities that are active in the field of cancer in Scotland.

The European Cancer Patient Coalition (ECPC)

Over 250 member organisations represent the views of cancer patients in the European healthcare debate.
 
For more information on ECPC click here

Cancer 52

A group of charities concerned with the needs of people with less common and rare cancers.

The Lymphoma Cancer Alliance

Comprising the Lymphoma Association, Leukaemia CARE, Leukaemia Research Fund and Cancerbackup.

The Lymphoma Coalition

A non-profit network organisation of lymphoma patient groups, a global initiative dedicated to raising awareness of lymphoma.
 
For more information of the the Lymphoma Coalition click here

Working With Independent Bodies

At Leukaemia CARE we continue to work very closely with the various independent bodies set up to report to the Government and NHS on the clinical and cost effectiveness and new and existing treatments for all blood cancers.

Their reports or ‘technical appraisals’ will say which treatments will or will not be available on the NHS, and these decisions could impact very heavily on the treatment, quality of life and outcomes for everybody using the NHS, and more importantly for Leukaemia CARE, all patients affected by a diagnosis of leukaemia, lymphoma or allied blood disorder.
 
Leukaemia CARE consults with, submits evidence to and where necessary, appeals to these bodies, when we disagree with their conclusions. They are:

The National Institute for Health and Clinical Excellence (NICE)

NICE is the independent organisation responsible for providing national guidance on the promotion of good health and the prevention and treatment of ill health for the whole of the UK.

The Scottish Medicines Consortium (SMC)

The SMC provides advice to NHS Boards (Scotland) and their Area Drug and Therapeutics Committees (ADTCs) about the status of all newly licensed medicines, all new formulations of existing medicines and new indications for established products.

The All Wales Medicines Strategy Group (AWMSG)

The AWMSG offers advice to the Minister for Health and Social Services (Wales) in an effective, efficient and transparent manner on strategic medicines management and prescribing. The AWMSG, acting in a strategic and advisory capacity, is the conduit through which consensus can be reached on medicine management issues throughout Wales.

Appeals

Click here for information on appeals and evidence that Leukaemia CARE have been involved in.